The Guidelines (set up in the framework of Multiact Project) propose a roadmap to capture the ‘experiential knowledge’ of patients, to better understand how to draw on their experience and use the experience constructively for co-creation purposes. The roadmap consists of four activities: setting up an Engagement Coordination Team with trained figures; selecting the research steps where patient engagement is instrumental to meet the project’s mission/agenda; developing an engagement plan for each research identified steps; selecting the indicators to be used to measure the success and effectiveness of this engagement. 7 steps for patient engagement are foreseen: Translation to community; Setting research priorities; Breaking down boundaries between patients and stakeholders; Research design and plan; Research evaluation; Steering institutions; Research execution.
Part of interest: The entire document.
Target groups: Policymakers, Providers, Professionals, Patients, RPOs, Innovation Business