123. My brain Book: A case study on Responsible research and innovation and communication technology for ageing people

The case study (by Navda, 2018), linked with Orbit project, describes how people with dementia and their carers have been involved in several different and creative ways in the initial development and testing of a working prototype of a computer-based planning tool for people with dementia and their carers. The tool, called My Brain Book, aims to record information about the person with dementia in order to produce a care plan that is created jointly between the person with dementia and their families and shared easily with a range of professionals. Engagement activities included: a parallel priority-setting event, focus groups, involvement in design workshops, and testing of the prototype.

Part of interest: The entire document. It contains also a description of the way by which people with dementia and their family and caregivers have been involved.

Target groups: RPOs, Providers, Professionals, Patients, CSOs